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Welcome to the third edition of Gwalwa-Gai, the newsletter for the CRC for Aboriginal Health. Gwalwa-Gai is an expression used by Larrakia people to call other members of the Larrakia nation to meet. It is used to call clan groups together. |
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10th Annual Chronic Diseases Network Conference CRCAH is offering Aboriginal or Torres Strait Islander people who are CRCAH research students and/or who work for a CRCAH research collaborator, financial assistance to attend the 10 th Annual Chronic Diseases Network Conference as part our commitment to professional development and training for Aboriginal and Torres Strait Islander people. The overarching theme for the Conference, Health is everyone's business --- everybody's choice? emphasizes the broader impacts on health status, on lifestyle choices, and how often people's “choice” is constrained by many factors. This theme matches well with the CRCAH's Chronic Conditions program. To view the CRCAH Chronic Conditions Program Statement. Click here to open. to open. The conference theme and many sessions throughout the conference are in line with many of the CRCAH's priority program areas including: · Chronic Conditions · Comprehensive Primary Health Care Health Systems and Workforce · Social Determinants of Health · Social and Emotional Wellbeing The conference will identify and explore three broad levels of factors affecting health: downstream at the micro level which includes health service systems and disease management; midstream factors including lifestyle and behavioural programs; and upstream at the macro level which is about policies, legislation and global influences. By establishing this framework, the conference hopes to encourage better communication and engagement across streams, and ultimately inspire broad collaboration between sectors as is required to tackle social determinants. For more information & application form: click here
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Program Updates - Chronic Conditions, Social Determinants and Primary Health Care |
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Our Chronic Conditions Program Leaders (Kevin Rowley, Leisa McCarthy and Brendan Gibson) are hard at work drafting project outlines and research questions arising from the research priorities endorsed by the CRCAH Board at its March meeting. We will circulate these project outlines in the next week or so, and looking for expressions of interest from people who want to be involved in the projects. At that point we will be looking for expressions of interest from people interested in being: Project leader for a specific project Part of the project team for a specific project Government or Aboriginal health sector people to be involved in the projects. Part of the quality assurance process for the projects. We will also be looking for projects that are already up and running, that may be able to contribute to the priority areas of research. When we make the call for expressions of interest, it will be important that Link People let the staff within your organisation know that this is happening – as it's the main way that people can get involved in the CRCAH's new way of developing projects. Social Determinants Roundtable and its outcomes The Industry Roundtable for the Social Determinants program was held in Adelaide on June 6. The Roundtable gave an opportunity for a wide range of Government Departments both State/Federal as well as Aboriginal community-controlled organisations to meet and discuss collaborative research and evaluation outcomes for the program. As part of the capacity development priorities of the Social Determinants Program, a number of students also took part in the Roundtable. The aim of the Roundtable was to identify potential partnerships and evaluations which the CRCAH might support to help build the evidence about interventions that improve health through action on the social determinants. Group discussions explored such potential partnerships. Discussions centred on the activities of those who attended, and included: Building awareness of the social determinants of Aboriginal health Racism Housing and the physical environment Education, employment and childhood Three areas were identified that were not sufficiently represented at the Roundtable: Education, Law and Justice, and Culture and Land. It is proposed to hold further small industry focus groups around these areas of the social determinants. One clear potential partnership emerged. Rumbalara Aboriginal Cooperative in Victoria has developed a program to focus on building home ownership within the Aboriginal community in the Shepparton region. The program is strongly supported by the Commonwealth Government. Rumbalara is keen to include an evaluation of the program that would look at its impact on health outcomes, and the Board agreed at its June meeting to support Rumbalara in the development of an evaluation plan. Primary health care projects The CRCAH's program on Comprehensive Primary Health Care, Health Systems and Workforce is moving towards finalising all four projects that are currently under development. These are the first four projects to be developed under the new ‘facilitated research development' process, in which the CRCAH brings together project teams to develop research proposals that will address particular issues of importance, developed by the Aboriginal health sector and prioritised by the CRCAH Board. Final paperwork is being drawn up for two projects:
The CRCAH Board has given the go-ahead for Stage One to commence of a project looking at Health Services Utilisation and Linkage, once the final paperwork (a Statement of Project Responsibilities) is drawn up and signed. This project looks likely to involve three state jurisdictions (SA, Vic, and Queensland).
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| The key aim of the recently-proposed sociology of Indigenous issues thematic group is to build and support the engagement of Australian sociology and sociologists with Indigenous social issues. To support this aim, the core objectives of the thematic group are to:
Convenor Contact Details Maggie Walter Priscilla Pyett
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CRCAH program manager for the Social Determinants of Aboriginal Health and Social and Emotional Wellbeing Programs, Vanessa Harris, attended an important conference on Indigenous knowledge in New Zealand/Aotearoa last month with three of her program leaders. The Matauranga Taketake: Traditional Knowledge Conference, held in Wellington, was organised by Nga Pae o te Maramatanga (National Institute of Research Excellence for Maori Development and Advancement). Nga Pae o te Maramatanga, one of seven Centres of Research Excellence funded by the New Zealand Government, consists of eight participating entities spread throughout New Zealand. The vision ‘is the transformation of New Zealand society such that Maori participate fully in all aspects of society and the economy'. Their mission, similar to that of the CRCAH, is ‘to provide excellent research, capability building and knowledge exchange to support achievement of the vision' and their annual report explains, “We support research and development that fosters healthy communities in healthy environments, encourages social and educational transformation and brings a uniquely Maori work view to new frontiers of knowledge. We are accelerating the growth in numbers of Maori researchers, and conducting research in ways that genuinely engage with diverse Maori communities”. The conference theme was to address the issues, practices, models and perspectives for protecting, sustaining and nurturing traditional systems of knowledge. Some of the questions asked of participants included:
There were several keynote speakers from Africa, Hawai'i , Australia , Canada , America and NZ whose presentations mirrored the program areas within the CRCAH's work in the areas of Social Emotional Wellbeing and Social Determinants of Aboriginal Health. The conference workshops and discussions were around the areas of Wellbeing, Emotional Wellbeing, Sustaining and Maintaining Wellness, Modeling Wellbeing, Health and Physical Well-being in curriculum reforms and strengthening Indigenous law and culture and heal the trauma of colonization. Vanessa told Gwalwa-Gai that the conference enabled her to gain a better understanding of some of the emerging issues around areas of health and wellbeing. “One of the highlights for me was seeing the strength of Maori language as one of the factors that unite the Maori community to their culturally identity,” said Vanessa. “People felt proud to be part of the growing number of fluent speakers within Maori society. “The Conference gave me the ability to hear of work currently being undertaken in NZ and overseas and it was fascinating to witness the same struggles by the Maori people to develop an understanding around Indigenous notions of Social and Emotional Wellbeing from within several complex layers - Community, family and personal perspectives.” For more information: http://www.traditionalknowledge.co.nz/
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The Canadian Health Services Research Foundation is an organisation with some similar objectives to the CRCAH, particularly its role of facilitating knowledge transfer and exchange, of bridging the gap between research and healthcare management and policy. As part of this facilitation role the Foundation regularly produces Promising Practices in Research Use on its website to highlight organisations that have invested their time, energy and resources to try and improve their ability to use research. The latest installment of our Promising Practice series is "Bringing knowledge home: Embedding evidence into decision-making", the story of Saint Elizabeth Health Care, based in Markham , Ontario . To access the document, click http://www.chsrf.ca/promising/pdf/ppractices_5_e.pdf . For more information on the CHSRF: http://www.chsrf.ca/home_e.php
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As promised in the last Gwalwa-Gai this edition features a short opinion piece from Kungarakan/Gurindji man and Menzies School of Health researcher Geoff “Jacko” Angeles. Returning from a conference in Alice Springs earlier this year, Jacko was concerned about the small number of Aboriginal attendees… Indigenous Representation at Health Conferences I recently attended an Alice Springs conference on pneumococcal related illnesses; on research and treatment aspects and the potential for controlling and minimising this dangerous disease. Pneumococcal infection is a germ-related sickness that causes things such as meningitis (brain disease), pneumonia (lung & chest infection), and septicaemia (blood disorder). If untreated, a victim could die at a young age, become disabled, or at the very least be seriously sick for a very long time. So why should Indigenous people become more interested in attending conferences which address this kind of health-related information? Well mainly because unfortunately a lot of the issues discussed at these conferences affects us and our people. I won't attempt to provide statistics as I think we've had more than our fair share of hearing about how sick we are and many of us today are busy treating ourselves and our people, particularly our old ones. It is now time to learn more about how we may prevent the young ones ending up the same way. A reluctance to attend such conferences may be simply due to a lack of understanding of the foreign language used; English is a second or third language for many Aboriginal people and misunderstanding is compounded when information is given from a scientific, epidemiological and biomedical perspective. Translation and interpretation of conference language needs consideration. At the end of the day, if Aboriginal people aren't kept informed of health developments in their own communities then how can they possibly know about what could affect them – i.e. something they can't see coming? Prevention is the solution – but information is the key. The ‘feedback process' also requires more commitment and effort from visiting health staff, but if this isn't happening, then Aboriginal people should be encouraged to attend conferences so they can take back to their communities what was said. But rather than just advertising these sort of conferences, particularly those with an Indigenous component, and hoping for a good Aboriginal roll-up more emphasis must be placed on seeking out Aboriginal attendees. Aboriginal staff from relevant organisations must be seriously encouraged and supported to attend. How more effective might the dissemination of information from health conferences be if we have Aboriginal people feeding back to their own people, in a way that is more understandable and accessible to Aboriginal communities themselves? One way of achieving this is to ensure that more Aboriginal people are encouraged and able to attend health conferences that are relevant to our health. |
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The Heart Foundation and the Cardiac Society of Australia and New Zealand used the CRCAH Brisbane Showcase to announce Australia 's first guidelines for the diagnosis and management of acute rheumatic fever and rheumatic heart disease . Despite the fact that acute rheumatic fever has been virtually eradicated in affluent Australia over the last 50 years, the Australian Indigenous population has the highest rates of acute rheumatic fever in the world. Dr Roger Wilkinson, cardiologist and President of the Heart Foundation ( Queensland ) told the Showcase audience t hat acute rheumatic fever is a preventable illness caused by a delayed complication from an untreated bacteria l throat infection. It typically affects large joints, the heart, and less frequently the brain, skin and subcutaneous tissues. “Many doctors and other health professionals have not been exposed to this disease during their training and are unsure how to best treat patients. These national guidelines are needed by health professionals because they clearly explain how to diagnose and manage acute rheumatic fever and rheumatic heart disease,” said Dr Wilkinson. Diagnosis and management of acute rheumatic fever and rheumatic heart disease is proven, simple and cost effective. The guidelines identify:
“Acute rheumatic fever affects mostly young people and is an important cause of life-long disability, involving a lengthy and painful treatment regime and ultimately if undiagnosed or poorly managed, premature death,” said Mr Traven Lea, Manager of Aboriginal and Torres Strait Islander Program, Heart Foundation. In 2002, the incidence of ARF among Aboriginal and Torres Strait Islander children aged 5–14 years was**
In the same year Indigenous children aged 5 – 14 years accounted for over 50% of new cases of acute rheumatic fever. Moreover the prevalence continues to rise each year as previously undiagnosed cases are found. "Developing these guidelines is the first step in addressing this problem. We are now calling on all levels of government to work cooperatively to achieve the second step - implementation of a comprehensive control program that will include mandating of acute rheumatic fever as a nationally notifiable disease with the Communicable Disease Network of Australia." said Mr Lea. “This will allow the pooling of data, effective national surveillance, outbreak monitoring and research. Currently the Northern Territory and Queensland are the only two jurisdictions where Acute Rheumatic Fever is notifiable,” said Mr Lea. Guidelines are available from the Heart Foundation by: Calling Heartline 1300 36 27 87, or download a pdf file from http://www.heartfoundation.com.au/index.cfm?=43 |
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| Hoops 4 Health Shoots a Goal for Better Health | ||||||||||||
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The CRCAH-sponsored inaugural Top-end Hoops 4 Health Challenge has been a huge success. A combination of health education and promotion messages, visiting basketball legends, motivational talks, dee jays and Anthony "Choc" Mundine, Hoops 4 Health was conceived by basketball star and Hep C/HIV worker, Timmy Duggan after watching close friends and family die from preventable disease. Timmy originally established H4H in North Queensland and it continues today in the Territory with the same messages of healthy living, good exercise and nutrition, and safe sex going out to young people, black and white. While in Darwin Timmy and his team visited primary and high schools, the Berrimah Prison and kid's wards at Royal Darwin Hospital to talk self-esteem, health and good living. More than a thousand sports fans came to see the Hoops 4 Health All-Stars, proudly featuring the CRCAH logo on their team shirts, beat a local Darwin Rep side after a hard-fought game broadcast live on the National Indigenous Radio Service. The CRCAH Communications Unit has worked closely with Timmy and his team; designing the game program and assisting with the H4H website and the CRC will continue to support high quality local health initiatives across the country. We wish Timmy and H4H the best of luck for the future of this exciting and inspiring health program.
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| Royal Darwin Hospital (RDH) Visit with the Hoops 4 Health Allstars | CRCAH Chair Pat Anderson with Anthony "The Man" Mundine. | Anthony at RDH | ||||||||||
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In an Australian-first the CRCAH hosted a national radio broadcast on Aboriginal health research last month. The broadcast of the nationally-syndicated Murri Voices program took place from the offices of the CRCAH in Darwin and was part of CRCAH's efforts to promote the role of the CRCAH and the importance of research amongst Aboriginal and Torres Strait Islander peoples. Hosted by legendary broadcaster, Velma Gara from Townsville's 4K1G, the two-hour broadcast on the National Indigenous Radio Service (NIRS) featured interviews and news on research into Aboriginal health. CRCAH Chair Pat Anderson and CEO Mick Gooda explained the workings and objectives of the CRCAH to the national audience listening in on Aboriginal and Torres Strait Islander radio stations and BRACS units across the country. Both Pat and Mick told the audience of the CRCAH's efforts to ensure greater Aboriginal control of the research agenda and to support increased Aboriginal entry into a research career. Velma was joined by the Hollows Foundation's Ursula Raymond for an update on its Indigenous programs. The broadcast also featured Dr Alex Brown on heart disease and the importance of men's health groups, Loyla Leysley on recent community development work around prevention of skin disease and scabies in Arnhemland communities and Geoff Angeles on his work in education for the prevention of rheumatic heart disease. For more information on Murri Voices: http://www.4k1g.org/programs.htm |
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As reported in previous editions of Gwalwa-Gai the CRCAH has been running series of seminas showcasing the work of the CRCAH and partners across Australia. May and June were particularly busy times for CRCAH showcases with the Victorian Showcase on May 29, Darwin on June 14 and Brisbane on June 29. The Showcases have proved an invaluable tool for marketing the CRCAH's agenda of reforming Aboriginal health research and highlighting the research projects being conducted by the CRCAH and our partners. There have been more than forty-five different projects presented at the five showcases held so far and more than 450 people have attended from diverse range of organisations and government departments. Of particular importance has been the large proportion of projects presented by Aboriginal and Torres Strait Islander researchers and students proving suggesting that the CRCAH's objective of promoting and encouraging careers for Indigenous people in health research is bearing fruit. The Showcases have also see a significant engagement with community-based and other organisations concerned with Aboriginal health. Representatives from more than one hundred organisations have attended Showcases up until now. Stay tuned to Gwalwa-Gai for information and reports on upcoming showcases in Cairns, Alice Springs and Perth.
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| Research Transfer in Action - Launch of Cancer Leaflet |
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Long time health activist and CRCAH Chairperson
Pat Anderson has been appointed by the NT Government to co-chair the Inquiry
into Protection against Sexual Abuse of Indigenous Children.
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The CRCAH Education and Training program is about to reach a ground-breaking milestone with the awarding of the first Doctorate to a CRCAH-scholarship holder. The successful student is Yin Paradies, an Aboriginal-Anglo-Asian Australian who has lived and worked in Darwin for the past 20 years. Yin began his career in Indigenous health research in 1995 as an Indigenous cadet at the Australian Bureau of Statistics, and came to the CRCAH as a Project Development Officer in 1999. Starting his CRCAH PhD in 2002 Yin's research interests include the health effects of racism and stress, race and culture in health research and anti-racism policy and practice. Yin has taught at the postgraduate level in epidemiology, biostatistics and demography. Yin has received a range of awards including a Fulbright scholarship to complete a Master of Public Health at the University of California , Berkeley and the Australia Day Council's 2002 Young Achiever of the Year for the Northern Territory . He is involved on a number of national committees and is the national student representative for the Australasian Epidemiological Association. Yin has recently submitted his thesis in social epidemiology, entitled 'Race, racism, stress and Indigenous health', which was conducted through the University of Melbourne while based at the Menzies School of Health Research. As well being the first Indigenous student funded by the CRCAH to complete a Doctor of Philosophy Yin is only the second Indigenous Australian to gain a PhD in epidemiology, the other being Professor Sandra Eades. Yin continues his career in health research as a post-doctoral research fellow based at the Menzies School of Health Research in Darwin. With Dr Emma Kowal, Yin developed and continues to deliver a highly regarded short course: Race, Culture, Indigeneity and the Politics of Public Health through the Menzies School of Health Research. As reported in the last Gwalwa-Gai the next round of Yin's course will run from August 23 - 25 2006 . For more information:
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